Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Monday, April 20, 2009


Georgia developed a fever around 4:00 this afternoon. Thank goodness is was shortly before the team was scheduled to arrive. I gave her some Tylenol and we have now started a new course of antibiotics. Once her fever had broken and she woke up she was quite happy. I even brought her downstairs for a while for a change of scenery and of course a ride in the swing. At the moment she is sleeping if somewhat fitfully (Is that even a word?!) Mike and I are both pretty tired and are going to turn in for an early night. Once again we are hoping for an uneventful night and a happy morning.

Thank you to all of the families that have been contacting us. As we find the time we will definitely be in touch. Thank you to all of you that continue to pray for Georgia, keep her in your thoughts or send your positive energy her way. I don't think that we ever elaborated about the 'episode' last Saturday night but at one point we were told that she had hours maybe minutes left to live. Nobody can explain what happened but somewhere during those few moments she stabilized and we have been given 9 more days with herso far. It was too early for the antibiotics to have kicked in, so essentially there is no scientific explanation as to why she got better. I'll let you draw your own conclusions. But we continue to be grateful for all of you.


  1. Georgia is full of surprises, as she showed Easter weekend, and we pray she continues to surprise you each day with her fighting spirit, smiles and laughter. I can only imagine what her getting a fever has done to your emotions, the 'little' things for most that aren't so little for her. We will certainly be sending positive thoughts and energy your way, as well as love and prayers as always. Love Bruce and Em

  2. She`s a great little girl!!

    How you two are coping with the ups and downs only God knows. I do believe in the power of prayer, i`m not saying it will change the outcome but i am praying for peace for you all.I`ll be praying extra hard for you both to be given a good nights sleep, and a very peaceful sleep. God Bless


  3. We are sending our love to her, with extra hugs and kisses today. I truly hope it was a peaceful night for all of you and the day ahead brings sunshine. She is never out of our thoughts.
    Love Madge and Paul

  4. It is great to see that you have found SMASpace! I hope you get the support and information you need there. :) We're with you in this new journey, so don't hesitate to reach out and ask questions!! Peace <><

  5. Just wanted you to know that you and the family are in my thoughts as I get up to begin the day (as everyday). I hope the night was uneventful and this morning brings a great day for you.
    Tons of love.
    Jo & Damien