A blog about family life and remembering our sweet Georgia, who died of SMA.
Welcome to Georgia's Journey
Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.
On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.
The morning of April 20th Georgia had developed a fever. She had just finished a course of antibiotics but new ones were ordered and started. Later that day her fever broke and she was like a new child...or more like the one that we once knew. She was full of smiles and had found her voice again. I have clear memories of those few hours with her. We sang songs and she rode in her swing. I just wanted to savor every moment with her and stop time. Here was my beautiful, happy baby full of energy and having fun. April 20th would be Georgia's last full day on earth. Those moments that we had together would be the last time that I would see Georgie smile, or even open her eyes.
Her breathing became more and more labored through the night. The next morning she seemed calmer but my instincts were telling me otherwise. I knew that when the time came that I wanted Georgia to be in my arms. I wanted her to understand that she was loved beyond measure. It wasn't long before the curtain between this world and the next was opened wide. I so desperately wanted to keep her here but I knew that my job now was to surrender.
Georgia's life and death were beautiful. The memories that we have of her we cherish. The pictures that we have of her we treasure. We watch for signs of her everywhere, from the dozens of birds that visit our yard to the sound of the wind chimes when there is no breeze. We continue to tell her story so that others will know her, understand her...remember her.
We carry her in our hearts every second, of every minute of every day. We continue to fight to end SMA. We talk about her daily. We miss her terribly.
Letting go of Georgia was the hardest thing that I have ever done. I am learning however that the only way to truly find peace is to trust in something greater than myself and to truly surrender.
Check out Aria in her new bunny hat. Isn't she cute? The hat was purchased in conjuction with the Gwendolyn Strong Foundation so that cute little number is actually a donation to help end SMA. Click here if you'd like more information. Love to you all, Kristen