Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Wednesday, September 1, 2010

The Truck

When a parent receives a terminal diagnosis for their child, you may as well hit them with a truck...literally. All of the air seems to leave your body and you are left disoriented and hurting. The diagnosis is just that however, a word, a prediction of what will probably happen. A parent will most likely take some deep breaths shake off the disorientation and keep moving. Their child needs them and so they step up to the plate.

When your child takes their last breath however the truck hits you again. This time it slams you right in the chest leaving you struggling to breathe and wondering why you would even want to. Your body seems to ache all over and you have a hard time deciphering what is real. Everything seems surreal, as if you are truly walking in a nightmare. You just want to wake up and live happily ever after.

Peeling yourself off of the pavement is no easy task. Oh sure, you can read books about it, talk to experts and even take meds. It still isn't easy. It can take weeks, months even years. There is no timeline. It took me a long time to peel myself up off the pavement, to become a mother and wife again. As the weeks went on, I found myself seeing clearly. Breathing didn't hurt so badly and I knew all of the reasons that I wanted to keep it up.

I have accepted the loss of my daughter. I have learned to smile when I talk about her instead of crying my eyes out. I have found ways to keep her memory alive. I consider myself a better person since losing her but... I still get hit.

You see. Once you have lost a child, you can peel yourself off the pavement but you can't get off the road. The truck just keeps coming. As time goes by, you can start to expect it at certain times and prepare yourself. But there are still days, moments where the air is suddenly sucked right out of your body and your heart aches terribly.

I choose not to avoid the truck. I let it hit me. Sometimes I even welcome it, help it along. It reminds me that I am alive - that I am only a human. While I put on a smile and explore the world with my three surviving daughters, I am forever a mother that has lost a child.

Love to you all,

Kristen


Tuesday, August 31, 2010

Betty's Hair Raiser

So, in case you didn't already know, my mom is an absolutely incredible person. In conjunction with this year's Georgia's Journey of Hope she is accepting donations to either shave her head, get it into a mohawk or to keep it. All donations go to Families of Spinal Muscular Atrophy Canada and my mom has pledged to do whichever idea raises the most money. We would have liked to shave her hair at the actual fundraiser but she is leaving on a European river cruise for her 40th wedding anniversary a few days later so she is doing it later on in October. Don't worry we'll post all of the pictures!! : ) You can check out all of the details (and donate online) by clicking here.

And, just in case you still don't know how incredible my mom is, she will be baking her famous cinnamon buns. They will be available at the garage sale, September 11th with all proceeds going to Winnipeg Children's Hospital or you can pre-order some and we'll deliver them to you. All of the proceeds from the ordered cinnamon buns will go to Georgia's Journey of Hope. If you're interested please contact either my mom or me.

Just a quick reminder that there is a meeting at my place tomorrow night at 7:00. It won't be very long. Please bring a pen and a piece of paper.

Love to you all,

Kristen