Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Tuesday, April 14, 2009

no expectations now


I should have known Georgia would have a good night when, driving home from the airport after dropping off my sister ("auntie trish") we saw the Blue family's Christmas lights on. Calla and Maya were very impressed when I explained why they were on, and it's fitting that most of the lights are twinkling stars.

As Kristen mentioned the good night carried into the morning, and as it turns out Georgia had a great afternoon also! We took her mask off and she was a bit fussy at first, we wanted to take her outside and even hooked up the portable O2 canister, but she didn't seem ready. So we were about to put her mask back on but Kristen tried laying her down in our bed and she suddenly perked up. So we played with her there for quite a while (see the attached video) and then put her in her baby swing where she hung out happily for over an hour. The palliative care team (two doctors and one nurse, fantastic people all of them) arrived at this time for their daily visit, and were very impressed at how well she was doing. Her improvement is amazing after they had told us she only had "hours" left. Prayers really do work!


After the scare we had Saturday night I really feel like there are no expectations now. Kristen and I both understand that Georgia could leave us at any moment. Questions with numbers for answers -- hours? weeks? how many? -- are almost pointless. How can we enumerate that which is infinitely precious?

So we just take it day by day, hour by hour, sometimes minute by minute. And thanks to all the help we've been received (friends taking C & M to play at their place, meals, prayers, etc.) we are able to focus more of that time on what really matters.

13 comments:

  1. Thanks for sharing your beautiful girl on video.
    Love, Auntie nancy, Nicki and Josh

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  2. Our prayers & thoughts continue to be with all of you. Thanks for sharing Georgia with us; she is very special. XO to all.
    Evelyn & Tony

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  3. What a beautiful little girl. Thank you for continuing to share your moments with Georgia with us.
    She truly is an angel and a gift to us all.
    Love you.
    Jo

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  4. We also thank you for continuing to share your precious time with Georgia... What wonderful memories for you and all of us... She has the most beautiful expressive eyes... Love you Georgia!!! What a beautiful little angel you are! Hugs and kisses from Auntie Mary lynn and Uncle John

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  5. The power of prayer is truly amazing. so happy to see her holding on and enjoying life.

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  6. I was thinking the same thing as another comment-what incredible, expressive eyes Georgia has. You can see the interest she has when looking at you, and especially the camera, and the love she has and feels. I am so glad that your amazing morning carried through the day, what a day for all of you it must have been. Thank you so much for sharing with all of us such special, family moments, it really does make us all feel like we are there, sharing in the joy that Georgia brings! I will of course be thinking and praying for all of you, to have another wonderful day and especially today that Georgia has the strength and feels ready for you to take her out in the sun. I know you really would like that and I hope you are able to see the sun shine on her face soon!
    Hugs and Kisses to Georgia and of course all of you as well, Love Em

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  7. Today is such a beautiful day...hopefully it's the day you can take Georgia outside to enjoy the wonderful sunshine and the many geese overhead. I'm so glad she is having such good days lately. Reading about her good times and seeing her enjoying her surroundings and family in the videos just makes my heart soar for you guys.

    Renelle

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  8. Thank for sharing this video with us. Ella and I loved watching it. Georgia looks so happy and so loved. What a special little girl! Thinking of you guys everyday.

    Michelle

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  9. I was very happy to see Georgia, so happy and alert and sharing more special moments with her mommy & daddy!!!

    Ron, Donna & Mandi
    In our thoughts and prayers!

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  10. Thanks for sharing the videos/pictures of Georgia with us all. Not a day goes by that we don't think of you all and admire the strength that you show during this most difficult time.

    Love
    Doug & Marlene

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  11. Kristen & Mike,
    Thank you for sharing all of your videos of Georgia. It's so nice to see her smiling and laughing. What a beautiful angel. Our thoughts and prayers are always with you.
    Ivone & Mark

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  12. Maggie says....Georgia you're a rock star AND your music video rules. We can see what a great musician you are and how you love to play the xylaphone (heavy metal) and you have one of you favourite fans cheering you on. Well Miss Georgia, uncle Bryan and I are one of your groupies...we'll follow your beat....love you
    xoxoxoxoxo Auntie Grandma & Uncle Bryan.

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  13. My thoughts and prays are with your family and your beautiful little girl. How brave and special that you have shared this so that others know that they too are not alone.
    Lydia Harris

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