Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Thursday, April 16, 2009

about the VPAP

Just wanted to comment on something in Kristen's last post .... Part of why we think the VPAP saved her is that if they had waited any longer they probably would've had to intubate, and we feel that once on ventilation she may not have been able to come off.

Even so, for a few days in the hospital it was touch and go and I remember one of the doctors during rounds saying she was "on the fence" about intubating -- if Georgia had worsened at all she certainly would have. Luckily, that was right about when she started to stabilize.

So yeah, as Kristen says, it really does help to look at the additional time with her (esp. since Saturday) as a bonus. It's a lot better than thinking about all the things that we won't get to do with her. Though sometimes we can't help it, and that's when the tears come.

1 comment:

  1. We are all crying with you. My heart breaks to think of your pain and the mere thought of life without her.