Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Friday, April 3, 2009

Past email (3/29/09) - Video

Hello to all,

Before I begin let me just state that for those of you that watch the video, I have yet to see, I cannot sing a note. My beautiful daughter however couldn't care less so as you watch the video forget the voice and focus on Georgia. Focus onow she continues to fight and surprise doctors and how she loves her mommy and daddy despite their dreadful singing voices. : )

Yesterday was another good day. Georgia successfully came off of the assistance 3 times for 3 hours each. During the last trial Gillian helped remove all of Georgia's wires so that she could have a quick bath. This was a very precious moment for Mommy. At the end of the last trial however, Georgia was very tired and her oxygen levels started to drop. I was angry at myself for not having pushed to put the mask back on sooner. I knew that she was tired, it was almost 10:00 for crying out loud, and I didn't speak up. Georgia stabilized quickly after having the mask back on but I was left on edge. My mind can go crazy sometimes as I sit there and watch her (Eckhart Tolle would not be impressed).

This morning I made it clear that trying to put a baby on a 13 hour day schedule makes absolutely no sense as most babies her age are in bed at night for 12. I told them 10:00 is a very late bedtime for a baby even one in hospital. The doctors and nurses agreed with me explaining that sometimes it's easy to forget about those regular routines. Today Georgia didn't wake until 9:30 and we are all trying to readjust her schedule to allow for more time without assistance.

Of course, tomorrow we expect the results of the blood work they did last week. To say that I am not terrified would be a blatant lie. Mike and I remain hopeful however. I came across a saying in my magazine yesterday that said you have to approach life with love and not fear and so that is where I try to refocus my energy. Of course I want to hear great news tomorrow. Georgia is one of the 3 most precious people I have in my life. No matter the results however, being afraid for her or for us will not help. Mike and I are dedicated to loving her and
willing her to get better.

We are forever grateful to all of you for your ongoing support. Tomorrow morning as you wake up I ask that you pray that we will get good news from the doctors. We ask for your prayers for Geogia's improving strength and for those of you just focusing I ask that you continue to picture our Georgia at her big birthday bash trying to blow out her candle as her sisters stand at her side arguing about who should blow it out first.

I promise that when we know the results I will have someone send out an email to let all of you know. I feel a little bit like we're all in this together.

Love to you all,
Kristen


*Videos*
Singing to Georgia while Mike rocks her (off the breathing mask):
http://www.youtube.com/watch?v=4jZ7oz-lwOc

Georgia laughs at Calla's pony antics (this is 2 weeks before she was
admitted to hospital): http://www.youtube.com/watch?v=cfqjgSTUHuw

Auntie and Uncle visiting
Georgia
Sisters Maya & Calla
Mommy & Georgia
Lamb Attack!


1 comment:

  1. I was forwarded this blog and have just started reading about your journey. I'm a mother to four and I just want to commend you and your husband for being so strong.
    I also want to tell you that your baby girl has THE most beautiful blue eyes!

    ReplyDelete