This is Mike. Kristen wanted me to send a quick update today to let people know that we didn't get the test results today (for the SMA test). We both waited anxiously all day only to be told around 4pm that we would get the results on Wednesday (not even tomorrow!). Definitely frustrating, but not much we can do about it.
Also I should let you know that things haven't gone quite as well since Kristen's last update. On Sunday afternoon Georgia was off the breathing support and doing well, coughing a fair bit but that's what she needs to do to clear her lungs. But then she coughed and suddenly started choking, and I realised she couldn't breathe at all. I yelled for help and several doctors and nurses came running. After some scary moments (seconds? minutes?) watching her oxygen level and heart rate plummet they were able to clear the blockage and get her breathing again. I guess it shows while we're still in ICU. (They were even prepping the 'crash cart' but luckly didn't need to use it.)
Anyway, after that episode Georgia has seemed a little more tired, and the doctors today were being more conservative and didn't want to take her off the breathing support, at least for today. A bit heartbreaking as she had been doing so well prior to this.
Nevertheless we are doing our best trying to remain hopeful! All the support we've received and continue to receive from everyone is honestly what's keeping us going. It truly is amazing.
Keep up the wishing, thinking, singing, and praying!
8 Years an Angel
2 weeks ago