Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Friday, April 3, 2009

Past email (4/2/09) - Taking Georgia Home

This is Mike. Sorry we haven't been able to write since we got the diagnosis yesterday. I'll just give a brief update and let Kristen do a more in-depth one when gets home.

From everything we're being told we'll be able to bring Georgia home tomorrow afternoon! We've spoken at length with Palliative Care and Home Care staff, and we're going to try to make Georgia's last weeks (their best estimate was she had "weeks" remaining) as comfortable and happy as humanly possible -- for her and for our family.

It isn't what we hoped for but after almost 3 weeks at the hospital it will be so nice to bring her home. There's a lot of equipment involved, but everyone is very nice in showing us how to use it and it all seems manageable. And there are palliative care nurses/doctors on call for us if we need any help.

Take care,

P.S. As Kristen spent last night at the hospital I printed off the latest emails and brought them this morning for her to read. She often reads through tears but it is obvious that all the kind words bring her peace. They certainly do for me. So thank you, from the bottom of our hearts.

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