Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Friday, May 15, 2009

Day by Day

Apparently the geese didn't like my comments in the last post because yesterday they decided to be the first to greet me as I pulled into the cemetary. There they were with a whole trail of brand new little goslings trailing behind. The way they looked at me and turned their backs as they went about their business had me laugh out loud. I will try not to insult them again! : )

Our lives continue day by day, often moment by moment. I still am not able to commit to anything, my mood is as unpredictable as the weather. I have gone to the gym a few times now and that does seem to help during the "angry" moments. I continue to go to the cemetary regulary although I haven't gone today. The weather is just so nasty. It's actually snowing right now!

We have been told that we will have an answer to Mike's appeal by next Friday, so much for 5 business days! We are trying to take it all in stride. For the most part Mike and I tag team the girls. When he is feeling really down I try to keep them occupied and vice versa. The girls seem to be doing quite well. They will continue going to their activities for another week before everything starts to wrap up for the summer. Sleep seems to be our biggest issue. We all end up playing musical beds everynight as the girls are often up. Calla has even started sleep walking. I just keep telling myself that it's all part of the process.

Love to you all ,

Kristen

9 comments:

  1. Grief truly is a day by day process and it sounds like you are still 'handling' whatever is thrown at you, which is really the best and only way to do it. It is really shocking what stress and grief can do to you, and I am not surprised to hear about the girls waking and even Calla's sleepwalking-it shows that even though kids "carry on" so much easier than we do that they are still struggling in their own ways.

    I am so glad to hear you have gotten to the gym, you certainly need that time for yourself and what a great way to release some of the stress and frustration of it all.

    We will continue praying for you all and especially Mike's appeal right now so that you can have some more time to adjust, as much as you can, before he is back at work.

    Of course we are always thinking of you and sending our love! Em

    ReplyDelete
  2. Still thinking of you and praying for you.

    I also just wanted to let you know that I am doing my first ever blog giveaway in memory of Georgia. In order to be eligible for the giveaway, people have to sign the Petition to Cure SMA. I hope this will help!

    ReplyDelete
  3. Hi...I am a sister to Tammy (TammyIsBlessed), and because of her spreading the word, I have signed the petition to Cure SMA.

    My heart goes out to you and your family. Georgia was a beautiful little girl, and I know she was a huge blessing in your lives and will continue to bless your lives even now that she is gone.

    ReplyDelete
  4. I read about your daughter via Tammy's blog also, and have signed the petition.

    I wish I had adequate words to say at such a time as this. (((hugs))) will be praying for you and your family.

    ReplyDelete
  5. Thinking of you!!
    Love and Hugs,
    Em

    ReplyDelete
  6. I have been reading about you and sweet Georgia over the past few weeks, through Tammy's blog and your own. Through Tammy alerting us I have signed the petition. You are and have been in my thoughts and prayers.

    ReplyDelete
  7. The way you described those geese actually made me laugh out loud! Maybe you should insult another bird... but pick a really pretty one ;o)

    It snowed here too... I think you guys are having the same sort of weather as Alberta right now.

    Hmmm, can't anything be worked out on time? I guess not ;-/ I hope things work out with your husband and work. I'm glad you guys are able to help each other out at home and that your girls are doing well.

    I remember my sleepwalking days. So confused feeling all the time lol

    ReplyDelete
  8. I heard about you from friends and have been praying for you and your family. Altough I haven't gone through the pain of having a child who was sick, I have a friend whose daughter also has SMA. I have watched her deteriate over the last few years. Her mom has started hosting annual socials to raise money for SMA research. I have signed the petition.

    ReplyDelete
  9. Here from Tammy's blog as well and have signed the petition. I can't even imagine how you're all feeling right now. (((hugs)))

    ReplyDelete