Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Wednesday, November 17, 2010

Dark Days

A year ago yesterday, I got up early (like 4 AM early) drove to the airport and took off for Toronto. I went to have a CVS test done on Aria to find out if she had SMA. I was home in time to have a late supper and put the girls to bed. It was a cool blustery day but the sun was shining. It's funny. I wasn't nervous about the test at all. I sat in the waiting room reading a book and then went for lunch afterwards before returning to the airport. I even picked up a new book while travelling because I had finished the first.

We would wait 11 days for the results and those 11 days were some of the darkest of my life. While, I had never really been nervous about the test, the results terrified me. How would we handle another child with SMA? What would that do to the girls? What would that do to us,.. our parents,.. our friendships? Would we try to move down to the States? Would we sell our house? What would that do to the girls?

The questions and uncertainties were without end, and for 11 days my world was dark. It didn't help that it was November. November just happens to be dark and gloomy with the first snow storms always threatening. My mother's instinct told me that the baby was fine and over the years I have learned to trust that instinct but, SMA is HUGE! It had come into my life once and shattered my world. The pieces hadn't even been put back together and I was afraid that it would be shattered again. I was afraid that if it did happen again I wouldn't be able to put any of the pieces back together. This time the grief would not only swallow me whole but leave me in a pit of despair that I would never again climb out from.

It didn't help that almost nobody knew. I didn't want to answer questions when I wasn't prepared to answer them. I didn't want to have to look Calla and Maya in the eyes and say, "I don't know." It was all still too fresh. I'm sure some people thought to themselves that we should have waited. Georgia hadn't been gone very long after all. I'm sure others thought that we should just have counted our blessings - two healthy kids. And others probably thought that we had no business getting pregnant when we knew that there was a possibility that we could bring another child with SMA into the world. How cruel and selfish! Thank you to all of you that may have thought any one of these things and kept them to yourself. I was not ready to hear them last November.

During those dark days I kept reminding myself why we chose to have another child. If we truly believed that Georgia was a gift and her life was full of meaning then why wouldn't we want to have another child, with or without SMA? Why wouldn't we want to try one more time so that Maya could practice being a big sister in her every day life? If we truly believed that the only way to live is to push out the fear and embrace love then we had to try at least one more time.

Don't get me wrong. As I said, I was terrified as I waited for those results. At times the darkness was almost unbearable but in the end we had our answer. Aria Evangeline would be born without SMA. They say that it's always darkest just before dawn and sure enough the dark days would come to an end. Just like that my world changed yet again.

Love to you all,


1 comment:

  1. Thanks for sharing that story, I can't even imagine how tough those days were especially not being able to share them freely.

    All I know is that Aria is such a gift, just as Georgia is, and that both have given so much to your family. Aria has made you and Mike and especially Calla and Maya come out of their shell, realize that although life throws us some terrible things there is also so much good...and even during the pain good things come and it is okay to celebrate even when you still hurt. You have taught those girls SO much about life and love, how the love of your girls transcends this earth and they are learning so much-both from loving and losing Georgia here on Earth, but also from loving and living with Aria each and every day.

    Thinking of you all as always, love and hugs, Em