Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Saturday, April 3, 2010

Home!

On Friday April 3rd of last year, we brought Georgia home. Our Palliative Care Team was nothing short of amazing. We were out of the hospital in record time. Many of the nurses, doctors and respiratory therapists had stopped by to say good-bye and as we left many of them stood there watching in shock at the speed of our departure.

Georgie was so happy to be home, as we all were. As many of you know we would hear her laugh the very next day. She had never laughed once in the hospital. Our time at home was precious and full of memories even though it would last less than three weeks. Because Georgia was no longer hooked up to machines and we were able to take her off bi-pap for a couple hours at a time, we had a lot more freedom. This freedom meant snuggling and having picnics on the bed, dancing in the living room with her sisters, relaxing in the swing, and playing in her room. We cherished every minute that we had with our angel with us.

"Home is where the heart is,
Home is where we learn to love." Fred Penner

Wishing you all a great Easter weekend!

Love to you all,

Kristen




3 comments:

  1. Taking Georgia home was the best decision for her and your family, without question. Everything you did was with her best interests at heart, and she absolutely knew that and felt your love as she continues to do. I hope you had a good Easter morning, we'll chat soon!! Love Em

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  2. Whatever doubts we had about taken her home were completely erased in the first day. At home she could finally relax and just 'be' with us. (Heck she even loved the trip home from the hospital, not to mention the stretcher ride to the medi-van. Anything was more interesting than the same room she'd been in for 3 weeks!)

    The day before a nice man from the oxygen supply company had installed an oxygen generator in our house, plus a backup tank in the garage. He gave us enough tubing to take Georgia anywhere in the main & second floors of our house, and we made good use of it in the weeks to come. I still remember the tears in his eyes as he shook my hand and gave me his card. I guess most of his clients had a lot more life behind them than Georgia.
    Still missing you sweet girl,
    Mike

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  3. Mike, Thanks for sharing those memories with us. I am so glad Georgia made it so obvious to you and Kristen that you made the right decision, the best decision for her.

    I can imagine the man who installed the oxygen was very touched by you both, and especially sweet Georgia...again, a perfect stranger touched by her story.

    She is such a special girl, and missed by so many....but in her short time here she taught so many, so much-more than most of us can do in a much longer time.

    Love you guys, Em

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