Approximately, half an hour later the 'team' had been gathered to answer our questions. We had very few. Mike and I were now on a mission to get our baby girl home and were ready for battle. The meeting was tense for a while as we were obviously grieving and there were some issues about how the news had been delivered, but getting Georgia home was our priority and it took the team very little time to realize that we weren't backing down.
I just want everybody to understand that we didn't bring Georgie home to give up on her. On the contrary we wanted to offer her as full a life as we could and we believed that her being at home with her family was the place to do that. The only medical options that we were offered was the idea of intubating her when things got worse and possibly traching her. Georgie's condition was advancing so quickly that we just wanted her to feel loved and enjoy her last days on earth.
Miraculously, with the help of some amazing people we would all be home within 48 hours.
Love to you all,