We are happy here in the Lucas household this morning. Why? Not just because the Gwendolyn Strong Foundation won one hundred thousand, not just because they came in sixth place and received over 50 000 votes but also for the first time since losing Georgia nine months ago we feel like the SMA community is finally being heard!
So, how does one little charity that most have never heard of, supporting a disease that most have never heard of, place sixth out of 100? How do they get 50 000 people to vote in one week? Dedication, hard work and never giving up! I have to tell you that throughout history begging and harassment are normally frowned upon but I have never been more proud of all the begging and harassing that I have done over the last 8 days. I have never been more proud to be part of a grassroots movement that gets things done by using shear will.
So, if you are one of the people that helped to make this happen do a little happy dance, give yourself a pat on the back, high fives and hugs all around. For Gwendolyn, Nicholas, Dakin, Haylee, Sophia, Nora, and Hodges who continue to fight, never forgetting Georgia, Nicholas, Olivia, Marshall, Emersyn, Zachary, Zane and so many more, we hope that you will continue to say the words Spinal Muscular Atrophy out loud. We hope that you remember that while people will get over being annoyed by messages on Facebook and through email, we never get over the loss of a child.
Thank you for reminding us that we are not on this journey alone. Thank you for reminding us in the power of the human spirit.
Love to you all,
Please consider sending congratulatory messages to Bill and Victoria Strong. They worked like dogs to make this happen and along with Gwendolyn they inspire thousands of us to keep going everyday.
8 Years an Angel
2 weeks ago