Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Saturday, January 23, 2010

Happiness

We are happy here in the Lucas household this morning. Why? Not just because the Gwendolyn Strong Foundation won one hundred thousand, not just because they came in sixth place and received over 50 000 votes but also for the first time since losing Georgia nine months ago we feel like the SMA community is finally being heard!

So, how does one little charity that most have never heard of, supporting a disease that most have never heard of, place sixth out of 100? How do they get 50 000 people to vote in one week? Dedication, hard work and never giving up! I have to tell you that throughout history begging and harassment are normally frowned upon but I have never been more proud of all the begging and harassing that I have done over the last 8 days. I have never been more proud to be part of a grassroots movement that gets things done by using shear will.

So, if you are one of the people that helped to make this happen do a little happy dance, give yourself a pat on the back, high fives and hugs all around. For Gwendolyn, Nicholas, Dakin, Haylee, Sophia, Nora, and Hodges who continue to fight, never forgetting Georgia, Nicholas, Olivia, Marshall, Emersyn, Zachary, Zane and so many more, we hope that you will continue to say the words Spinal Muscular Atrophy out loud. We hope that you remember that while people will get over being annoyed by messages on Facebook and through email, we never get over the loss of a child.

Thank you for reminding us that we are not on this journey alone. Thank you for reminding us in the power of the human spirit.

Love to you all,

Kristen

Please consider sending congratulatory messages to Bill and Victoria Strong. They worked like dogs to make this happen and along with Gwendolyn they inspire thousands of us to keep going everyday.

6 comments:

  1. Pretty exciting, isn't it?!?

    Congratulations to us all :)

    Helen/'Lucy'

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  2. Just wanted to say Congrats to you and thanks again for all of your hard work, time, and honesty you share with so many...on facebook and here on your blog. You are an inspiration to so many, and Georgia is still touching lives as I know she will continue to do!! It truly is incredible, not only the monetary side of things but the number of people who had never heard of SMA, like me before Georgia, now do, and can help fight this fight!! Thinking of you all, and sweet Georgia today.....I know she is looking down, smiling, so proud of the last week and knowing why she was given to you. Love you guys, Em

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  3. I thought the same thing - how wonderful it was for an organization of a "silent" disease like SMA made it so close to the top with so many other big name, very worthy charities!

    Thank you for energizing us into action :o)

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  4. So that was YOUR adorable baby in the video!!!??? Love that picture!!
    Hugs from Iowa,
    Sarah, Mommy to Stella (Type I SMA)
    www.caringbridge.org/visit/stellaturnbullturnbull

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  5. A friend of mine on facebook (whom I haven't seen since Grade 8) sent the following message:

    CONGRATULATIONS!!!! I give you and your wife credit for all you have been through.
    Kristen, what you wrote in your "SMA Reality" last week about your Georgia was beautiful. My heart cries out for you. It was poetic justice. What you and Michael have done for Georgia and those with SMA is amazing! Keep up the fantastic work! You will always have my vote.

    Brenda

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