Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Saturday, October 31, 2009

Halloween Fun

Trick or treating has just started to slow down. The girls have been home for over an hour. They ran around with some of our neighbors for about 45 minutes before calling it quits. I'm actually glad as it means less candy to deal with!

The girls have been in costume since Wenesday morning. It started with preschool and gymnastics and then carried on with kindergarten, dance and finally the big day. Maya was dressed as Belle (Beauty and the Beast) up until this afternoon when she decided that she wanted to wear something warmer. Can't say that I blame her. Good thing that we have a couple of fuzzy unicorn costumes kicking around. Calla was dressed as Tinkerbell with a long blond hair piece just for fun!

This year we let the girls each decorate their own pumpkins with sticker kits and then Mike carved the biggest pumpkin. Thanks for all the pumkins Auntie Joan and Uncle Allan. We also made Halloween cookies (pumpkins and ghosts). Calla looked at me this evening as she was getting dressed up and said, "Mommy, I've waited all year for this! It finally happening!" So nice to hear such enthusiasm.

Calla's is the cat and Maya's is the princess.

Love to you all,



  1. They were the cutest unicorn and tinkerbell-what a great pic! I loved their pumpkins, where did you get the kits to decorate with? I wanted to have the kids just paint them or something but it didn't happen...one carved pumpkin and some spider cupcakes for us! Glad to hear the girls had fun and I loved reading about how excited Calla was, how sweet! Take care and Happy Halloween. Love Em

  2. Hi Kristen,

    You just commented on my post at my blog and sure, I'd love to hear more! I don't think I have your email though. Are you on Facebook?

    Hope you are all hanging in there!

    ~Laurie P.

  3. Hi Kristen,

    My name is Kellie Span, & ours is one of the families working with yours for Unite for The Cure. I recently saw the post made about your fundraiser & how well you guys did. Congratulations! That has to make you feel so good to go above & beyond the $5000 goal.

    I have to tell you, when I saw the picture of Georgia, I was amazed at the resemblance she has with my son Zachary, who is also a Type 1 baby. I have heard through people in the field that SMA kids look similar, but this was uncanny. Needless to say I thought she was beautiful! I then went to your blog to see more pics, & was very saddened to hear she had passed. I've read some of your blog postings & can relate to so much of what you post. I really admire you for sharing yourself with so many, & putting it out there for strangers like myself.

    I also admire you for the way you handled Georgia's life. I have been very leery of befriending too many SMA families after hearing how passionate & ridiculing they can be of how some handle things. My husband & I have talked long & hard about the end of life choices for our son, & hopefully we won't have to deal with this anytime soon, but we do not plan to go the ventilator route & feel that we want the best quality of life we can give him for as long as possible. I myself am a nurse, & have seen people living dependent on machines for everything, & cannot imagine living like that myself or asking my son to do so either.

    Zachary was diagnosed at 2 mo. of age, & is now 6 mo. old & we are very pleased with how he is doing. Winter scares the crap out of me, but luckily we're in Southern California, so hopefully we can keep him healthy & strong. Please feel free to check out our family website www.thespanfamily.com Maybe you'll see the resemblance I'm talking about in the latest pictures of Zachary. Also, please feel free to email me at skydivrgirl@hotmail.com.

    Best wishes to you & your family as you continue to grieve & heal from this horrible loss.


    PS... I LOVED the comment your girls made about the fish dying, that was great!