Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Sunday, May 24, 2009

The Lance

A reporter from the Lance (our neighborhood paper) came by today. He came to learn more about Georgie, SMA and our blog. The story should be in this week. We are hoping that it will raise more awareness about SMA and get more people to sign the petition, such an easy thing to do. Before doing the interview one wise person advised us to decide ahead of time what we wanted our message to be so we didn't say anything we didn't really mean. Thanks, that was quite helpful. The story will be available online as well for all of you out of towners. (edit: here it is)

The sun is shining today and I am trying really hard to let it lift my spirits and yet I feel myself sinking. The last few days I have been reliving every moment from March 16th until April 21st. I can't really explain why. On Friday I ran into one of the respiratory therapists at Children's. She recognized me right away and gave me a hug. She is a lovely person and I was genuinely happy to see her but of course she brought back many memories of the hospital. Later that day, I read about Gwendolyn having some scary moments and I could feel that same fear that I lived for 36 days. Again, today I found myself talking to a complete stranger about Georgia and SMA.

Don't get me wrong. I will talk about Georgia until I can talk no more. I will continue to put one foot in front of the other until my body quits working. I can actually feel Georgia with me all the time now. She continues to urge me forward and yet I am still sinking back into that hole. All part of the process, I know. I am going to Lacoste's in a while to pick out some more flowers for the garden. That will help. I will also go looking for that treadmill within 24 hours otherwise the darkness will envelop me.

Love to you all,

Kristen

PS There were two bright yellow finches in the garden today. We were all excited! Georgie is trying hard to help me out of that hole.

2 comments:

  1. Definitely let us know when that story comes out, I'd love to read it!

    I'm sure it seems sometimes like you take 1 step forward and then 2 steps back. Continuing to pray for you and your family.

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  2. I am looking forward to reading the article written about the journey you are all on...I know you will have raised awareness once again about SMA and your precious Georgia. Keep looking at the sunshine and feeling your baby with you and the strength she sends. You have more strength than you know and although you will have days you feel yourself slipping I know you will continue to step out of the darkness- just keep it up one step at a time!
    Sending you our love and hugs,
    Em

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