On Wednesday Mike and I had an appointment with the genetic counsellor. It was an opportunity for questions and answers and we had our blood drawn to ensure that we are both SMA I carriers. The chances that we're not is less than 5%. The girls will have the opportunity to make their own choices regarding testing when they are adults. Let's all hope that there is a cure for SMA before my girls are of child bearing age.
We also walked up to the PICU to drop off some toys. I had thought that it might be difficult but it wasn't. Navigating the halls and elevators brought back memories but Mike and I can do that without even paying attention. I don't know how many times we made our way through that labyrinth. We saw a few familiar faces and stayed for a short visit. That part was easy because I wasn't in a state of panic as to how Georgie was doing. The fact that the meter had already run out was trivial. : ) Thank you again to Dr. Mhanni and all of the staff at Children's. We are forever grateful for the care that you provided and the compassion that you showed to a couple of visiting parents. We think of you all of the time. Congratulations Ben and sorry we missed you Lindsay.
To the person who suggested that the birds I saw were Nuthatches, I agree that those are the closest looking birds but I have yet to see one that I would say is the same bird. In fact, last night I spent way to much time online trying to figure out what they are. In the end, my friend and I had a huge laugh over the idea that I have either discovered a new species of bird or am indeed crazy! I have decided that I will keep searching and keep my camera close to the back door.
Lorraine, of course I remember who you are. I will never forget Jenna and her sparkly red shoes. Last summer we met at the swings and I had the opportunity to meet Ethan. I am sure that we will see more of each other again now that the weather is finally warming up.
For those of you still interested in reading the article here is the link. Yes, I know that the blog address in the article is wrong. I have contacted the reporter to let him know but he has yet to get back to us.
Love to you all,
8 Years an Angel
1 month ago