Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Thursday, April 9, 2009

Sometimes in the few moments in between sleep and wakefulness I am truly calm. Sadly for me as I am a light sleeper those moments last mere seconds and then I awake to find myself actually living a nightmare. My mornings are no longer filled with the sound of Georgia babbling ( as she used to so often do starting around 5:00 AM) but rather the sounds of the Vpap machine and the oxygen tanks. Georgia often awakes happy however, her big blue eyes taking in the morning and then the nightmare seems a little less scary.

Today we brought her downstairs and placed her in the swing. Her whole face lit up and she was happy in there for over an hour. The swing always was her favorite place. She also spent some time in the kitchen watching her sisters play. She was full of smiles and we continue to hear her laugh. We savour every moment we have with Georgia.

Mike's dad is in staying with us. He arrived with gifts for the girls of course. The best one being a dream catcher for Calla and Maya. They were thrilled to hang it in their room and have something catch their bad dreams. Great thinking Grandpa Bob!

1 comment:

  1. Kristen,

    Marie-Josée called me this morning. I am so very sad to hear about what you and your family are going through. Your little angel is truly beautiful. I hope you can all find some comfort in all the love and support that is around you. You are in my thoughts and prayers.

    Love,
    Maude Fortin-Sorkilmo
    Calgary

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