Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Tuesday, December 7, 2010


As many of you who have seen my facebook status know, today, December 7th Aria is 6 months and 15 days old. Why is that significant? Well, because that is exactly how long we got to keep our Georgie. Ironically, December 7th is also the anniversary of Wendy's (Mike's mom) death. I like to think of the two of them hanging out up there in Heaven. I never really had to the chance to get to know Wendy well but I know that she loved babies and would have been all over her grand daughters.

While we try not to focus on numbers and dwell on dates sometimes it's hard not to. Tomorrow, Aria will be older than Georgia ever was and that feels almost strange. She is already bigger that Georgia ever was (18.5 lbs and 27 inches) and is a super active kid. She never stops moving. : ) It seems odd that our baby girl will now start to look older than her sister. While Aria's pictures will continue to change, Georgia's will remain forever the same.

While I feel like I have made peace with Georgia's death I still have moments where I am angry. I can become easily overwhelmed and start to get really grumpy. Then I often feel guilty because Georgia was an amazing gift that taught so many of us so much in such a short period of time. I really believe that that was her mission in life...but being only human I still get mad. My treadmill is often my best friend when I am feeling like that. I run and run until the anger starts to dissipate and positive energy starts to fill me up again.

We had a good day today. Calla was performing in her school Christmas concert. I attended the afternoon performance with Aria and my parents. Mike and Maya are there right now for the evening show. Aria is currently sleeping in her bed. I am so excited to have another day with her. I can't wait to see what 6 months and 16 days will bring.

Love to you all,



  1. Your posts always touch my heart. You are right, Georgia did touch so many hearts in her short life and that was her little mission. You have given her a voice-a powerful voice that will continue to inspire people and will help find a cure for all of our SMA kiddos.

  2. All I know Kristen is that I am so proud of all of you, how you are taking it each day at a time, allowing any feelings you have to just 'be' while also allowing yourself to find joy in things again....and I know Georgia is so proud too! You are right, Georgia will forever be the same, but that is because she reached her perfection, she completed her life's tasks long before, and much better, than most of us ever will. She has touched SO many people, I am sure there are tons you don't even know, and so have you and your family. We are all so blessed to have you in our lives, to have Georgia in our lives and hearts forever but also now have the blessing of a new little one to watch grow and fulfill her lifes plan as well. Love and hugs, Em

  3. You always have such a powerful way to put things! We love and think about all of you often, and you are all still in our prayers for continued healing and peace.