Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Friday, October 1, 2010

Once Upon a Time

Once upon a time a couple rushed excitedly to the hospital anticipating the birth of their first born child. They were thrilled beyond belief to welcome a baby girl into the world and couldn't believe how it was possible to love a human being as much as they loved this little one. The baby girl delighted them with everything from the way she curled her fingers around daddy's pinky, to the way she made little noises as she stretched and squirmed. They took their baby home and were prepared to live happily ever after.

Somewhere between two and three months the mother noticed that her baby didn't seem as strong as some of the other babies her age. She didn't put any weight on her feet and still had a really hard time holding her head up. Worried that there might be something wrong, she decided to make an appointment with the doctor.

The doctor agreed that the little girl seemed weak and started a whole battery of tests. A few days later when they met again the doctor explained to the couple that their daughter had Spinal Muscular Atrophy. The couple was devastated as the looked into the eyes of their baby. They had lots of questions and felt like their fairy tale family was falling apart.

"Not to worry," the doctor said. "Spinal Muscular Atrophy affects 1 in 6000 babies but it's easily treatable nowadays. A few years ago it was considered a death sentence but thanks to the determination of so many dedicated families, doctors and scientists it's an easy fix. Your daughter will grow up to run and play just like all of the other kids."

The couple looked at each other in relief and held their baby tightly. She was going to be just fine and they all lived happily ever after...

A fairy tale today... A reality tomorrow...
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Love to you all,



  1. A dream that will come true thanks to so many families like you who raise awareness, funds and share your incredible story. We love you!!