Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Sunday, July 11, 2010

The World of SMA

In the world of SMA there are huge celebrations and far too many farewells. One of the most exciting things that happened this week is that Lucy Zahn (SMA 1) turned one. Yay Lucy!! Lucy's mom Barb and several relatives and friends all shaved their heads to make money for SMA and mark this momentous day. I should tell you that Barb had beautiful thick dark long hair but looks even more beautiful now that she has it shaved. Her selfless determination to save her daughter only shines through that much more. Your courage is inspiring Barb!

In Toronto the Rebecca Run went on. It takes place in New Market Ontario and this year our friend Emersyn Klomp was honored. Emersyn and Georgie would have been the same age. Their birth and angel dates are within weeks of each other. All money raised is donated to Families of Spinal Muscular Atrophy Canada. The Rebecca Run has become so popular that it now sells out! One day we'll all walk together Melanie!

And, then there are the farewells. On Friday right here in Winnipeg a baby girl was laid to rest. Josie was only a month old when she passed away from SMA. For those of you that are on Facebook we all know and are saddened by the passing of Xavier. Xavier had just turned 4 - a miracle in itself!! Two days later, on Thursday he had a plug that couldn't be cleared. My heart aches for these families and it saddens me to continually hear about all of these children dying.

And so... we continue on, not just to honor our Georgie but so many of these kids. Plans are now in the works for Georgia's Journey of Hope 2010. This is a heads up and a reminder for all of our friends and family here in Winnipeg. It will take place on Sunday October 3rd from 12:30-4:30 in the afternoon. I will once again be putting out a call for volunteers late in August. It will be a family fun event with bouncers and face painting of course. I am hoping that our famous balloon animal gal Kristen will be attending otherwise someone is going to have to take a course!! : ) There will also be food and drinks. Tickets will be available in September. Please help us to spread the word not just about the event but about SMA.

Love to you all,

Kristen


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2 comments:

  1. EmmaJuly 12, 2010 at 3:47 PM

    Kristen,

    I am so sorry to hear about Josie and Xavier, my thoughts and love go out to their families.

    I am so encouraged to read about the Rebecca Run and Emersyn's Entourage and all the incredible funds and awareness they raised once again this year! Awesome!

    I know Georgia's Journey of Hope will once again be incredible!! I didn't know how you did it last year, and once again with little Aria your strength and dedication to make this an incredible day leave me in awe, but I know Georgia is helping every step of the way too!!

    You inspire so many people to do better, to be better and I know that isn't your intention but it certainly is part of the outcome-what a bonus!! Georgia continues to live on, and is in my thoughts each and everyday (as are you all), and continues to teach all of us to live and love and what our true priorities need to be.
    Hugs, Em

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  2. AnonymousJuly 14, 2010 at 1:36 AM

    Thank you for keeping Josie and us in your thoughts. I wish that we didn't have to be part of the SMA world but since we do we willl do our best to create awareness. Josie's mum

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