Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Thursday, December 3, 2009

Holiday Spirit

Earlier this week we passed the deadline for the Unite for the Cure Campaign. I am so pleased to tell you that the families involved have raised over $95 000 and that Dr. Keirstead is already receiving some of that money. Even better news is that November 30th was only a soft deadline and the families involved are still planning events to continue raising funds. We are expected to surpass the goal!!

November 22nd marked my friend Emma's birthday and this year she and and her husband Bruce planned something special. They hosted an evening where they provided the food and fun and asked all of their guests to consider making donations to FSMAC. Not only did they raise much needed awareness about SMA, they also managed to raise an incredible $1000! What an awesome birthday party! Thank you so much Emma and Bruce for being such generous people and part of our amazing support system. We are so grateful to have you in our lives. Thank you as well to all of the birthday guests that took part in the event. Your generosity is overwhelming. Sorry Emma, I have yet to figure out how to post that picture.

Here at home we have started to get into the holiday spirit. Last Friday Mike set up the Christmas tree only to take it down again (lighting issues) and run out on Saturday morning to buy a new one. We then put it up on Saturday evening and finally managed to decorate it on Sunday morning in our pyjamas (at Calla's insistence). Calla spends her days dancing around singing Christmas carols and Maya tries to join in when she can remember the words. Next week both Calla and Maya have Christmas performances at their school that they both seem really excited about. Christmas is so much fun when the little ones are around! : )

Love to you all,



  1. We did the same... we stopped putting up the tree half way only a quarter of the lights worked... then we all put our PJ's on and decorated while watching Mickey's once and twice upon a Christmas. The girls are singing and dancing and Morgan's a Cow in her catechism play next Saturday's! We can't wait. she's been practicing her mooing for 2 weeks now.
    Sending you our love! We think about yous everyday still.

  2. That's great news about the funds that are being raised and the awareness raised by friends and family. I would think that Georgia would be so proud of all of you.

    Is there anything more entertaining during the holiday season than a school xmas concert? They are always a joy.