Welcome to Georgia's Journey

Georgia Lily Lucas was born at home on October 6th, 2008 4:15am, in Winnipeg, Manitoba. She was diagnosed with SMA (Spinal Muscular Atrophy) on April 1, 2009.

On April 3rd Georgia was taken home, to be near her sisters and the rest of her family and friends. Nearly three weeks later, on April 21, 2009, she died peacefully -- in the loving arms of her mother and in the same room in which she was born.

Tuesday, September 15, 2009

Inspired

I didn't really feel like writing tonight but I came online to check on the other families via their blogs and was inspired. I only write when I feel like it and lately I don't often feel like it...mostly because I don't have a lot of time to sit down and reflect. I checked on the Unite for the Cure site and another family included the following quote in their reasons for accepting the challenge:

“Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has.” — Margaret Mead

Ahhh...

Remember my club? I believe that I said something about not underestimating our power. I asked you all to help us fight instead of watching helplessly from the sidelines and so many of you are stepping up. I also read the Daily Dakin about a little boy who continues to fight. His mother has decided that before she takes her last breath she will see this disease eradicated. I wrote back to her in agreement. I actually decided that quite some time ago. SMA will be eradicated and all of you will have been a part of that.

If you still have some doubts regarding the importance of the stem cell trials down in California then please spend some time reading some of the blogs I follow. So many families are still fighting with their little ones and they deserve a fighting chance. These children deserve to sit up, crawl, walk, eat, breathe and swallow on their own. These children deserve to not only celebrate their birthdays but blow out their own candles!

Our family total for Unite for the Cure stands at $1800.00 right now. That does not include the $400.00 that we made on the weekend. Thank you to all of you that have helped to make that happen. There are many more ideas being thrown around and put into action. I have no doubt that we will raise the $5000 nor that my club will raise the $100 000. Georgie would definitely approve of what we have done.

Love to you all,

Kristen

2 comments:

  1. I read that quote each time we are at the zoo, and each time I think of you and this journey. A small group with a desire such as yours can do anything....and although I wish you weren't a part of it at all, I know you will do everything you can to help and fight this dreadful disease.

    I often read in amazement at your strength, your courage and your heart...and I know Georgia is so, so proud of you and all you do in her name.

    Take care, Love Em

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  2. I have begun to follow many of the families that are listed on your blog and I thank you for that. I have developed a friendship with the Strongs' that has forever changed me. You and they and the many other families inspire me beyond what I ever could have imagined. Your strength, determination and appreciation in all that you do shows me that a cure is to be found. I am looking forward to bringing my children to Georgia's fundraiser in October.
    I honestly don't know how you do what you do, but you are an amazing woman! If you ever doubt that, don't because you continue to fight for Georgia!
    Thank you for continuing to share your inner thoughts and allowing us to be a part of your journey.
    Be well,
    Lisa :)

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